Vol. 29, No. 7
AUGUST-SEPTEMBER 2004
THE MID-FLORIDA VOICE
A publication of Mid-Florida Council of the Blind
TABLE OF CONTENTS
MESSAGE FROM MFCB PRESIDENT RACHEL BADER
NEXT GENERAL MEETING
JUNE LUNCHEON REVIEW
ORANGE COUNTY TALKING BOOKS SITUATION UPDATE
TD COMMISSION AND MEDICAID FUNDING
FCB HAS A DISCUSSION LIST!
MFCB ON THE WORLD WIDE WEB
GETTING INVOLVED WITH THE UPCOMING ELECTIONS
MEMBERSHIP - from Jay Bader
BIRTHDAY PEOPLE
MESSAGE FROM MFCB PRESIDENT RACHEL BADER
Members of MFCB, I hope all of you have had a great summer. As you'll see by reading the rest of this issue of THE MID-FLORIDA
VOICE, despite the summer break, it's been none the less busy for MFCB as we've had some important advocacy issues to work on.
Further details on both of these will be discussed later in this Newsletter.
I want to thank all of you who have contributed your time and talents on behalf of MFCB and the rest of the Central Florida blind
community with regard to the Talking Book Library situation as well as that of Medicaid transportation. Regardless of the outcomes in
either of these situations, it is my sincere hope that in addition to gaining a favorable outcome, those who are charged with making
final decisions in each of these cases will gain a greater awareness and respect of the impact their decisions could have on the blind
community and the disabled in general. We'll be sure to keep you posted.
Looking forward to seeing many of you at our next meeting in September.
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NEXT GENERAL MEETING
The next Meeting of MFCB will be at Booth Towers, 633 Lake Dot Circle, Orlando, FL, 32801, on Saturday, September 4th, 2004, from
1:00 PM to 3:00 PM. It is highly recommended that if anyone uses paratransit, please plan your rides accordingly.
President Rachel Bader will call a Board Meeting at 12:30 PM.
As of this issue going to press, it is not known whether or not there will be a guest speaker for this General Meeting.
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JUNE LUNCHEON REVIEW
22 members were present at the Annual June Luncheon on June 12th at Logan's Roadhouse in south Orlando for good food and the
presentation of Awards. The newly-married Patti Land presented the Connie Rotter Scholarship for 2004 to Janice Wright. Janice is
studying at the Asbury Seminary. Her goal is to be a chaplain, at a hospital, senior center, or a school or agency serving youth. She
has received training at CITE, and is also very interested in becoming active with MFCB. As a result, we may be hearing more from her
in the near future.
Also, Rachel Bader formally presented the FCB Chapter Award for Mid-Florida to Jay Bader for all his work locally with the membership
and THE MID-FLORIDA VOICE. In addition, Rachel announced that Jay received a President's Special Award at the 2004 FCB
Convention in Tampa the weekend prior to the Luncheon.
Congratulations to both Janice and Jay! Rachel also wished everyone a great summer and is looking forward to many good things
happening with MFCB when we return in September.
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ORANGE COUNTY TALKING BOOKS SITUATION UPDATE
As this issue goes to press, the issue of the Orange County Talking Book Program continues to be an important concern. Both MFCB
President Rachel Bader and myself, Jay Bader, have been seriously involved in meetings with the Orange County Library System
(OCLS), as well as 2nd Vice President Jackie Gideons and members Nicole Hugues, Bill Freeman, Lisa Lawson, Chuck and Arline
Graham and Shelley Justice. Much has happened since the June-July issue of the MID-FLORIDA VOICE on the situation; the following
will hopefully catch everyone up.
On Wednesday, June 9th, MFCB President Rachel Bader and myself participated in a second private meeting at the Main Orlando
Library in Downtown Orlando, focusing on the Talking Books situation. We were there along with Dwight Sayer, President of
NFB-Orlando and member of the Blind Veterans Association in Orlando; Lee Nasehi, Joyce Hildreth and Connie Stolp of CITE,
Lighthouse for the Visually-Impaired in Orlando; Millicent from the Orlando office of the Division of Blind Services; Mary Anne Hodel,
Director/CEO, Debbie Moss, Assistant Director, Marilyn Hoffman, Community Relations Director, Lynette and Wendi from OCLS as
well as R. Gregg Carlson, Library Program Administrator for the Bureau of Braille and Talking Book Library Service in Daytona Beach
and Vicki Vargo, Orlando City Commissioner, District 3.
For about 90 minutes, we discussed what could be done to keep the Orange County Subregional Talking Book Program. Some of the
discussion focused on the problems since the beginning of year, which has been primarily due to no dedicated staff for Talking Books;
other time was spent on what could be done to properly fund such a position as we found out that none was noted in the proposed
2005 OCLS Budget. During this time, I made sure to give all those in attendance a copy of the FCB Resolution passed at the recent
2004 Convention in Tampa that addressed FCB's stand on the situation.
Compared to the other 10 Subregional Talking Book Libraries, Orange County is unique in that much of the OCLS' funding comes from
millage of Property Taxes, and that does not help us. However, Commissioner Vargo urged us that we let the OCLS Board of Trustees
know how we feel about this and then go further with OCLS to the Orange County Commission regarding this funding. In addition, there
may be the chance to have an independent survey done of current Orange County Talking Book subscribers to get their feedback about
their local Subregional Library.
Then on Thursday, June 10th, it was a rainy night for the OCLS Board of Trustees Meeting at the Main Orlando Library. Even with the
inclement weather, there was a good turnout of MFCB members as well as members of NFB-Orlando and even a few from NFB-Tampa
that took the trip to voice their concerns about the issue. The Subregional Talking Book matter would be addressed in the Public
Comment part of the Meeting, so all those who wanted to speak had to fill out cards which were forwarded to Board President Thomas
Kohler.
Then each of us, including Rachel and myself, spoke out concerning all that OCLS is doing and not doing for the print-disabled
in general. I also made sure the Board got a copy of the FCB Resolution on the Subregional Talking Book Library, which I was told
would be entered into the Board Meeting Minutes.
Mr. Kohler, as well as Sara Brady, Vice-President, said they were confused about what was happening, that we really were not making
ourselves clear. That's where Greg Carlson came in. It seems as though the Board has not been made aware of the guidelines for
properly running a Subregional Talking Book Library. Fortunately, Greg had with him a copy of these guidelines and gave them to Ms.
Brady so the Board now knows what is truly involved in this whole process.
It was very surprising to find out after a good hour of speakers how uninformed the Board was about this; Mary Anne Hodel did not help
matters much, either, as she did not really say anything about these guidelines. In fact, when the talk came down to what would have to
be returned to Daytona Beach, she thought that only the books needed to be sent back and that they keep the Talking Book machines.
As one, we all told her that EVERYTHING related to the Talking Books Program would need to be returned to Daytona Beach should
they lose the program, not just the book inventory.
In the end, Mr. Kohler did apologize for OCLS not doing a good job of informing the print-disabled about the Subregional Talking Books
Program. In addition, no decision has been made about whether or not to fund a staff position for it. Ms. Hodel and Mr. Kohler both
noted that over $600,000 has been budgeted for ADA concerns; however, it's not known if any of that could even be considered in
regards to the Subregional Talking Books Library, which, as has always been the case, is in the Main Library in Downtown Orlando.
As a result of what took place at this OCLS Board of Trustees Meeting, a protest was organized by the National Federation of the
Blind (NFB) - Greater Orlando Chapter. This protest was on Saturday, June 26th, near the Orange County Convention Center in south
Orlando, where the American Library Association had been holding its annual convention. MFCB, in the form of Rachel Bader, Larry
Turnbull and myself, were there as well; however, as decided by the MFCB Board a few days before, we did not participate in the
protest. We did give out copies of an extra issue of our chapter Newsletter during the time we were there.
Before we left, we handed Greg Carlson of the Bureau of Braille and Talking Book Library Services in Daytona Beach, who even hung
a banner around the nearby statue where the protest took place, some copies of our Newsletter to help give out. There were a few
people who approached us and we were glad to tell them our chapter's stand, as well as FCB's through the Resolution passed at the
recent Convention, on this ongoing issue.
According to Bureau Chief Mike Gunde, the June 30th deadline for a decision whether or not to retain the Subregional Talking Book
Library in Orange County would be extended, primarily due to the efforts of CITE, DBS, NFB-Orlando and MFCB. During the July 8th
OCLS Board of Trustees Meeting at the Washington Park Library in Orlando, nothing was mentioned about this extension, especially
since Board President Thomas Kohler and Vice-President Sara Brady were out of town and not in attendance. In a recent posting to
the Florida Council of the Blind (FCB) Listserv, Nicole Hugues mentioned that this branch in particular did not have sufficient resources
for the print-disabled:
"One of the individuals arrived extra early to see what services where available for the print-disabled at this branch. He found out that
there were no computers with JAWS or screen magnification software, no descriptive videos, no braille books, and then he asked if
there were Talking Books and found out that there were Talking Books on cassette and on CD but nothing to play them on. The
consumer then said, "So if a blind or print-disabled individual comes into this branch there is nothing for them to do." The librarian
said, "You are correct.""
That leads to what may be the most important day for MFCB Members in many years. On Thursday, August 12th, 2004, OCLS will hold
its monthly Board of Trustees Meeting from 7:00 PM to 9:00 PM at the Downtown Orlando Library, 101 E Central Blvd., Orlando, FL
32801. The participation of OCLS as a Subregional Talking Book Library is on the agenda for a final decision. The public, especially
those most affected by this situation, will be given an opportunity to speak prior to the vote. If anyone needs special accommodations to
attend this Board of Trustees Meeting, please contact Nicole Hugues as soon as possible at (407) 207-7974 and let her know what
type of accommodation is needed.
We will have the results on this situation in the next issue of THE MID-FLORIDA VOICE
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TD COMMISSION AND MEDICAID FUNDING
Another issue that has presented a concern recently is Transportation and the impact on those with Medicaid, which include members
of MFCB. Like the Talking Books situation, MFCB is involved in trying to make a difference. Here's a little idea of what has been going
on:
On Monday, July 19th, a public meeting was held in Orlando at Orange County Commission Chambers concerning the issue of the
Commission for Transportation Disadvantaged (CTD) and its proposal to cut funds for Medicaid Transportation. This "Special
Delegation Hearing on Proposed Medicaid Cuts" was chaired by Rep. Jim Kallinger, Chairman of the Orange County Legislative
Delegation. At least 75 people attended this meeting, with those that could not sit in the Chambers either standing in the back and on
the sides of the Chambers or watching the meeting in an adjacent room from a feed to Orange TV.
All the major affiliate TV stations were on hand as well as Bright House 24-hour local news service Central Florida News 13. FOX 35
interviewed a mother who has a 16-year-old son with cerebral palsy. One of the other stations showed a woman who was crying and
asked that the Medicaid transportation not be changed. The feeling of many in attendance was that since no one from the CTD spoke
at this meeting (Lisa Bacot, Executive Director of the CTD, was invited but refused to attend), there are many questions left to be
answered concerning the following:
On June 22nd, the Commission for the Transportation Disadvantaged (CTD) voted to impose a 40% funding cut - $2.8 million - on
Central Florida's Medicaid transportation service. Thousands of our constituents who are elderly and disabled depend on this service
each day to reach their doctors and obtain healthcare.
The CTD made NO cut in funding to 58 out of 67 Florida counties. The CTD did not recognize the fact that LYNX is one of the few
agencies in the entire state that had proactively taken a strong business approach and saved Medicaid $1.4 million over the last two
years. The CTD also chose to provide some counties around the state with double the per trip funding that they were willing to allocate
for Orange, Osceola and Seminole Counties. Three counties - Orange, Osceola and Seminole counties - will be forced to absorb 40%
of the entire statewide cut ($2.8 million out of $7 million) for 67 counties.
The other counties that are in the same situation had representatives speak at the meeting as well. Duval and Miami-Dade counties
face the same dilemma as us in Orange, Osceola and Seminole counties, where we all have made improvements in the efficiency of
paratransit operations; in fact, Duval also would absorb 40% of that statewide cut. Linda Watson, the new Executive Director of LYNX
(the Community Transportation Coordinator (CTC) in the 3-county area), expressed concern over the CTD proposal and said that there
is a possibility of legal action to stop this funding cut from taking place; however, LYNX would do all possible to avoid that.
The Orange County Delegation were pretty much in agreement that this 40% CTD cut was not justified and that if the original 12%
federally mandate cut were to be reinstated, that would be manageable. Rep. Johnson noted that there are $10 million that has not
been touched that was specifically allocated some time ago by the state legislature for paratransit purposes. Even though it took
almost 3 hours to get to the public opinion part of the meeting, those who did speak, which included Nicole Hugues of MFCB and
Sherri Brun and Evelyn Dawursk of NFB-Orlando, supported the Delegation's concern that Medicaid clients would be severely impacted
by this proposed 40% cut. It also was discovered at this meeting that 7 of those serving on the CTD are themselves transportation
providers, which makes things even more troublesome.
The CTD held a meeting in Tallahassee on July 26th to primarily follow up on this situation. However, nothing substantial came out of
this meeting except that the Agency for Health Care Administration (AHCA) recommended that the CTD delay implementing this
Medicaid Transportation cut, which would have taken effect on September 1st. As this issue goes to press, no further date has been
scheduled for further follow-up.
We will continue to report on this situation in THE MID-FLORIDA VOICE.
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FCB NOW HAS A DISCUSSION LIST!
Florida Council of the Blind (FCB) is proud to have its members throughout the state participate in its E-mail Discussion List. The FCB
E-mail Discussion List is a way for members, locally and statewide, to express themselves freely on a variety of issues. These can range
from those on a local level to issues on a state or even national platform.
MFCB encourages everyone with E-mail and Internet access to sign up and participate in the various discussions as well as maybe even
starting a few. To sign up for the FCB E-mail Discussion List, and for more information about the List, go to the FCB website at
http://www.fcb.org and go to the link for “FCB E-mail Discussion List Information and Instructions.”
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MFCB ON THE WORLD WIDE WEB
Mid-Florida Council of the Blind has a presence on the World Wide Web. Through the Florida Council of the Blind web site,
http://www.fcb.org, there is information available on the Internet about MFCB as well as current and
some past issues of the MFCB Newsletter, both in the previous name of MUMBLES and the newer name of THE MID-FLORIDA VOICE.
This is only the beginning as another option has been made available for people to find out what is going on with our
organization.
To specifically get to the MFCB section of the FCB website, go to http://www.fcb.org/mfcb.htm.
Feedback is strongly encouraged as to the accessibility and content of the website, so if you have any questions or suggestions, e-mail
webmaster@fcb.org. With your suggestions so far, there will be some changes
forthcoming that will better what we have on the Web.
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GETTING INVOLVED WITH THE UPCOMING ELECTIONS
With the importance of the upcoming November 2004 elections, our national organization, the American Council of the Blind (ACB),
wants its members to let their elected officials as well as their opposition know their concerns. Each person has a decision to make
and it is vital to the election process that every voice is heard in order to make a wise choice at the voting booth. The following is
reprinted with permission from the ACB Newsletter "The Braille Forum," Volume 43, Number 1, July-August 2004.
PRESIDENT'S MESSAGE: An Open Letter
by Chris Gray and Paul Edwards
(Editor's Note: Chris Gray is the current President of ACB.)
At the spring convention of the California Council of the Blind, one of our local chapter presidents, Martin Jones, sought me out to ask
about an article he remembered from "The Braille Forum," and wished to read again and consider using in coming months. The article
was an open letter to elected officials and contained many excellent thoughts and ideas to convey to these officials. The article was
originally written by ACB's Immediate Past President, Paul Edwards, (Editor's Note: Paul is also the newly-elected President of the
Florida Council of the Blind (FCB).) and after reading it, I proposed to Paul that we update the article, and provide it as information on
which action can be taken by ACB members. Feel free to make any and all modifications you wish, but we ask that you seriously
consider sending a letter such as this during this key election year in our country.
We hope that what we say will speak for both the Democrats and Republicans among ACB's membership. People with disabilities
must be heard once and for all by those who seek political office. Our message must be clear and explicit. Whether we are speaking
to judges, city commissioners, town selectmen, state representatives, Congressional candidates, or those who seek the presidency,
our message with regard to blindness and disability is the same. We believe that everything said in the paragraphs below is based
either on positions this organization has taken or on general principles that are core values of the disability rights movement.
We are obliged to take politics seriously because our issues are, for the most part, being marginalized by both major political parties.
We must say to those seeking office that as a matter of livelihood and necessity we cannot accept vague generalizations of good will.
It is time for us to ask for specifics and to challenge those who have not kept their promises. Unless we become involved and actively
seek to place our issues on everyone's political agenda, we will simply not be heard and our needs will not be met.
Here, then, is the draft letter for your consideration. Please send it, or something like it, to any official you may be electing in 2004. It is
our firm belief that you and they will be glad you did!
Dear Office-seeker:
I write you today as one of your constituents with several questions and suggestions on which I sincerely hope you will write back to me
in the near future. I am one of 54 million people with disabilities. We are the largest minority in the United States. We are the poorest
minority in the United States. We are a minority whose unemployment rate is 70 percent. We are a minority whose children are
dropping out of school at twice the rate of non-disabled people. And, please bear with me to underscore this very important point one
final time, we are a minority!
I write first to ask for your participation in a dialogue with me, and second to request your meaningful help toward improving the lives of
disabled and blind Americans. I, myself, am blind and will speak specifically to issues regarding blindness, but also to many issues
about which the disability minority is in substantial agreement.
When you speak of minorities, you usually do not include us. Perhaps you do not know what to say, or how to say it. But we desperately
need your consideration and your thoughtful commitment to programs to improve the lives of the blind and disabled of this nation. We
affirm that our status as a minority arises from the fact that we suffer from insidious, systematic and unrelenting discrimination. Thirteen
years after the passage of the Americans with Disabilities Act, neither the dropout rate nor employment have been much affected. The
promise of the 1990s has been replaced by the perils of the 21st century. Both the news media and politicians have attacked the only
civil rights law that protects us. What specific steps will you take to protect the rights that the ADA affirms and to move beyond protection
to assure that people with disabilities can fully participate in our society?
The 21st century will be known as the century of information. Technology is less affordable and less accessible to people with
disabilities. Only a fraction of blind people can afford even to own a computer, and accessibility to the screen is problematic for most
users.
What steps will you take to mandate that your community, state or the nation assures that people with disabilities are not excluded from
the immense benefits of information technology? How will you assure that people who are disabled will continue to have access to
technology as it evolves?
Virtually every new appliance being manufactured is becoming unusable by people who are blind because of the universal use of a
visual interface. Stoves, washing machines, television sets and cellular telephones are becoming impossible for people who are blind
to utilize fully. What steps will you take to strengthen and broaden the minimal protections that currently do very little to require or
encourage manufacturers to make these products accessible?
Blind and visually-impaired people have benefited significantly from the video description of television programs that began to be
provided by the major networks. What steps will you take to assure that this service which parallels closed captioning is restored and
expanded?
Many countries, both rich and poor, have found ways to make their paper money identifiable by people who are blind and
visually-impaired. The United States Department of the Treasury is actively fighting efforts to make our currency accessible. What steps
will you take to remedy this clear violation of our civil rights?
Funding for programs and services for people with disabilities has remained inadequate. In many communities, per capita expenditure
on disability-specific programs has fallen. What will you do to guarantee that funds are channeled into programs that begin to redress
the inequity that makes people with disabilities the most under-employed and poorest minority?
There is clear and unequivocal evidence demonstrating that services delivered to blind people by separate, self-contained service
delivery models with their own budgets and consumer governance are far more effective and successful than models where services
are delivered to all disability groups at once. What specific steps will you take to create and protect separate services for people who
are blind?
No matter what steps our country takes to make jobs and our communities more available to people with disabilities, these efforts will be
worthless if we do not develop a public transportation infrastructure that enables people with disabilities to travel freely. What will you do
to assure that communities, states and the nation create public fixed-route and paratransit systems that are truly available to people with
disabilities?
The Social Security system continues to create disincentives to return to work. The per capita income of people with disabilities is well
below the poverty level. What will you do to make community, state and federal funds available to provide for the equipment and work
incentives that will enable people with disabilities to return to work? What specific Social Security reforms will you sponsor?
Not one state got good marks from the Department of Education for their implementation of the Individuals with Disabilities Education
Act. The percentage of blind children who graduate able to read braille continues to fall and far too many disabled children are being
encouraged to work toward meaningless and limiting special diplomas rather than seeking regular high school graduation. Dropout
rates for students with disabilities are significantly higher than that of non-disabled students. What specific steps will you take to assure
that real educational opportunities and true individual educational programming emerge for students with disabilities?
While the unemployment rate for the nation, as a whole, is below 5 percent, the unemployment rate for people with disabilities remains
at nearly 70 percent. At least a substantial portion of this unemployment is the result of systematic discrimination. What specific steps
will you take to assure that the discrimination that limits employment for people with disabilities will be vigorously opposed?
While other Americans can and do make choices about their futures, people with disabilities are often treated in custodial ways and have
very limited choices. What will you do to broaden the ability of each American with a disability to choose where he or she works, what
community activities he or she chooses to participate in, and where he or she chooses to live?
More than half of the blind people in the United States are over 55 years of age. Yet, less than 10 percent of the funds spent on serving
blind people aid this population. Describe the particular actions you will take to redress this imbalance and provide appropriate services
to older people who are blind.
Hundreds of people who are blind die or are seriously injured every year because our nation is becoming increasingly less safe for
pedestrians. What will you do in your community, state or in the nation to create more accessible pedestrian signalized street crossings,
tactile warnings at dangerous street crossings, and a more pedestrian-friendly environment?
Both major political parties, cities, states, and the federal government, all receive very little input from people with disabilities. Describe
the steps you have taken and will take to assure that the opinions of people with disabilities are regularly sought. What will you do to
broaden access to government for people who are disabled?
People with disabilities often cannot exercise their right to vote in privacy because very little effort has been made to make ballots
accessible, and many polling places are inaccessible. Describe the steps you would take to assure that people with disabilities can
exercise their right to cast a ballot independently at an accessible polling place.
I hope that you, as a candidate, recognize that these questions are just a few of the many that could have been asked. People with
disabilities are the minority with least appeal and with the most serious agenda today. Systematic exclusion, whether intended or not, is
real and endemic to our society. No candidate who is not prepared to publicly recognize the serious problems faced by people with
disabilities can be seriously considered for election by the disabled community.
We are not a special-interest group crying out for privilege! We are a minority group insisting on our rights as American citizens. We do
not ask for your support. We require your action in order to become full participants in American society. Persuade us that you are
serious about giving the 20 percent of Americans we are a fair chance to be treated equally! This is our challenge. How do you
respond?
I welcome the chance to discuss any or all of these issues with you and your staff. I encourage you to consider coming to a meeting of
our organization to listen and speak with us about solutions for the future.
Sincerely,
Chris Gray and Paul Edwards, Presidents
American Council of the Blind
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MEMBERSHIP - from Jay Bader
Notes from Jay: Hope everyone has enjoyed the summer break so far. However, as September approaches, it is time for the annual
MFCB Membership Drive, in cooperation with the Bureau of Braille and Talking Book Library Services in Daytona Beach. Those mailers
will begin in early September with the hope that there are those who receive it interested in becoming members of MFCB.
There will be those who get this mailing that are already members but please keep in mind that if you are a Talking Book subscriber in
Orange, Osceola or Seminole County, this will arrive. So if you know someone who you think may be interested in becoming a Member
of MFCB, or if they would like to donate to our organization, pass it along. Just as they do on the state level, donations are always gladly
accepted.
Beginning at the September General Meeting, I will also begin to accept dues for new members as well as renewals. Please note that
the dues for 2005 are increasing to $12.00, as approved in the revised MFCB By-Laws. If you attend a General Meeting, this is payable
by cash, check or money order; otherwise, please send your dues by check or money order to the following address:
MFCB Membership Secretary
5611 Pecos St.
Orlando, FL 32807
Make your check or money order payable to MFCB.
And a reminder that I am accepting any submissions to THE MID-FLORIDA VOICE. All submissions must arrive by regular mail or
e-mail to me by the 15th of the month as issues are prepared shortly after that. I will make sure you are credited with the submission. If
you have any further questions, please call me at (407) 658-2479 or e-mail at
mfcbinfo@bellsouth.net.
Looking forward to seeing many of you at the September General Meeting!
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BIRTHDAY PEOPLE
AUGUST
1 - Lauren Berg
7 - Debra Spence
16 - Scott Larson
20 - Shelley Justice
SEPTEMBER
1 - Marlene Moore
6 - Nicole Hugues
13 - Jay Bader
14 - Marion Eiermann
26 - George Bachman
27 - Dan Spoone
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